just_cyd: (Default)
I don't recall ever truly wanting it. Not really. It's just what was expected of me, an AFAB child born and raised Methodist in the 1970s midwest: get married and have babies. Careers were schoolteacher or nurse, if I dared to want a career, otherwise i'd be relegated to Temp Worker like my mom. but first and foremost I was supposed to be wife and mother.

It's sort of a shock that I didn't end up pregnant, the wildly ADD but also highly unobservant and oblivious child that I was. No, that's not quite right. Oh, I was (and still am) wildly ADD, and can be oblivious to things that others can spot from space, but it's not true that I didn't end up pregnant. I did - twice - in my early 20s. it's just that neither of them stuck. The first one was a true accident, a broken condom somewhere in the midst of that crazy wild night, him freaking out, but diving right back into the fray with what must've been an industrial size box of condoms, until it was time for me to sneak out and rush home lest either set of parents catch us. I was 20, he was 24, but we both lived at home. The second time was not an accident, but also not consensual. We'd just started dating, he dropped by my place on our days off, and despite my protests got what he came for. Sometimes it's easier to just shut up and take than to try to fight off someone who takes pleasure in being able to physically overpower you. I was 23, he was 34.

Both instances ended pretty much the same way: a few weeks of worry, then a few more of denial (hey, 7-8 months between cycles was normal at this point, so why worry?). Around week 7, the sickness would hit, that malaise I'd never encountered before (until I did the second time), followed quickly by the violent cramping and passing chunks the likes of which I'd never encountered (again, until the second time). I bled heavier and my abdomen seized harder than I thought possible, knocking me to the floor and making driving a scary prospect. I knew heavy bleeding and cramps, and this was well beyond that. Both times, I endured it alone, never telling a soul.

One thing I did want, or at least enjoyed, was babysitting, and the cash that came with it. by age 12 I was working the circuit of moms at our church, and was one of the more in-demand sitters. about $2/hr was the going rate, I believe, and I was pulling in some nice coin. ADD-me spent it as fast as I made it, because the cursory "you need to save money" didn't even register to my ADD-brain, and there was never any talk of planning for the future, or college (which never came up, until it did, my senior year, when it was suddenly An Issue), or any sort of financial information that might have benefitted me as I slid into my teen years. if there had been any sort of talk on the subject, it would have been a lecture in a language I could not comprehend. Imagine my surprise when my younger brother had the cash to buy a car at 15, long before I did.

I was a good babysitter because I enjoyed playing with the kids and their toys, I wasn't mean, and I loved babies. It was easy! Play with the kids, maybe watch a movie, feed them dinner without having to cook it (if they hadn't already been fed), then tuck everyone into bed and cruise the cable TV and maybe give a baby a bottle. Head home with cash in pocket, easy peasy. By high school, I figured I'd marry my boyfriend and we'd have half a dozen kids. Except we weren't exactly a great couple, and he wanted to go to college. And he did. There were a couple other guys, but never for very long. College snuck up on me and all of a sudden it was mandatory that I attend something I had no means to pay for, nor any preparation for. I honestly think the first conversation about college came up when my dad said that I was required to go, get a degree, and then I could do what I wanted to do. the only prior attempt to address the topic was when I declared a few years earlier that I wanted to attend Antioch in Yellow Springs, and was told in no certain terms that I would NOT be attending that "Damn Hippie School" by my mother.

Heading into my third year of floundering at community college, working multiple part time jobs, and registering for classes only to drop them the week classes started and lie about it to my parents, something needed to give. What I really needed was help, so much help. Mental, physical, financial - I was a wreck in every possible way. Instead, it was suggested that maybe I look into getting outta Dodge. I'd wanted to be a nanny right out of high school, but mom wouldn't allow it. One day, in early 1993, mom spread out newspapers on the kitchen counter to re-pot some plants, and there it was, like a beacon in the dark of my life: an ad for a nanny placement agency. We laughed at the coincidence, put the ad aside, and after the plants were done, I gave them a call.

I was matched with five families, interviewed with two or three, and the M family in New Jersey offered me a job. Three kids, two boys and a girl, 3, 6, and 8, with the middle child having Cerebral Palsy. We negotiated my start to fall mid-June so I could finish up the semester at school, then we packed me up and drove me to a suburb of Philadelphia. I still don't know how I pulled that off. Hot Mess doesn't even begin to describe me. but the kids loved me, the parents loved me, and I was as involved as I could be and did everything I could to be the best pseudo-parent there was. Reality hit about 3 months in when the parents left the country and I got sick. OK, they drove to Toronto for five days, but still, technically out of the country. And it hit me that I could not leave the house without dragging all three children with me. Like, NOT AT ALL. We lived behind a shopping center that had a drug store and a grocery store that we could walk to. Just need to pop out for tissues or something? well, kids, get your shoes on, because you're all coming with. That was a huge eye opener. Life altering, even. The youngest had just turned 4, so all three were potty trained and could dress and feed themselves, although I still needed to supervise bath time and cook the food (or at least supervise selections), so no diapers or bottles or round-the-clock hands-on care, but ... Yeah. I also only knew one of the neighbors, the childless couple next door. I hadn't yet really got into the circle of parents at pickup yet, so I had no one I could call on had I been truly sick (like when I got the flu that winter, and had another parent fetch the kids from school).

because through this, at the ripe old age of 21, I'm getting that noise that I need to provide my parents with grandchildren. Pretty sure it was just dad making that noise, but still. The nanny thing lasted 14 months, then I moved down to the shore and in with a cousin while I tried to figure out my place in the world on minimum wage, and seeing her muddle through single-parenthood, it was clearer than ever that even if desperately wanted a baby, I could not do it on my own. Childcare would eat up any paycheck I had, and as I had yet to meet a man worthy of partnering with (including that 11-years-older gem), everywhere I turned I was told my life would be over if I didn't get married and start having babies. So when my apartment that required 3/4 of my paycheck to afford it became too much, I moved myself in with that 11-years-older asshole and figured I'd make it work somehow. The tl;dr there is that I did not, in fact, make it work in the end, but escaped with my parents help while he was at work. Yes, the very same parents who took every opportunity available to remind me of my duty to provide them with grandchildren and how I'd be an old maid like my aunt if I didn't get busy, get married, and get pregnant, not only changed their tune a bit, they drove back to coastal NJ from Ohio on 12 hours notice to collect me.

You see, all the while I'm being hounded about marriage and babies, back home, my younger brother and his girlfriend were apparently picking up the slack. Christmas 1995, as they drove home from a surprise visit to me, my brother announced that his barely 18 yr old girlfriend was pregnant. Who's laughing now, eh? I don't think it ever occurred to them that my younger brother would be the one to give them grandchildren, at least not before I would! He'd dated a girl the summer I moved east who had a baby, and lived with them all for a while, so mom had the grandma bug from the months baby C lived there. Now, heading into summer of 1996, mom was suddenly too young to be a grandma at 49. she was having none of it! oh, sure, she went nuts getting yard sale clothing and toys for the baby boy and made sure the nursery in their apartment was all set to go, but she was NOT going to be called "grandma"! But then, mid-July 1996, D was born, and at the age of 49, mom became grandma, and at two weeks before his 23rd birthday, my brother became a father. We arrived home from my frantic escape from NJ at dusk the day of D's birth, having stopped several times a long the drive to check in on them. We appealed to the hospital, and they allowed us to stop in that night to meet the new baby. Baby D opened his eyes and turned his head when he heard grandma's voice as we entered the room, and that's all it took to convince her that being Grandma was going to be fine.

The flurry of excitement of me moving home and the new baby took all pressure off me to spawn, at least for a while. Babies become toddlers, and grandparents get greedy, and when the still-single daughter isn't' showing any signs of dating anyone, what are parents to do? The correct answer is MIND THEIR OWN DAMN BUSINESS along with MAYBE NOTICE THE STRUGGLES AND HELP HER GET THE HELP SHE NEEDS but no, they were back on the baby bullshit. my brother eventually married his son's mother, briefly, and then they split, and I regret not doing more to ensure D had a more stable life during those years before his dad got custody. The truth is, I was barely holding my own head above water, so I couldn't see how I could possibly scrape together the wherewithal to give D what he needed.

Then mom got sick, and died. At some point after that, I briefly thought that if I can't find someone to marry, maybe I could just adopt on my own? I must've been having a REALLY good day that day. I started to look into it, and realized the expense and scrutiny I'd have to go through, plus moving to a place with two bedrooms, and then one mild inconvenience later I had abandoned the whole thing without ever having done more than think "what if?" I did some babysitting in there, too, but it was more out of financial necessity than anything else. I much preferred the couple whose son went to bed early, and paid handsomely the later they stayed out and the more than drank. This was shortly before I was diagnosed with Sjogren's, when I was having all manner of physical health issues on top of the still-there-and-never-addressed-and-growing mental health issues. I eventually got a diagnosis, and was surprised to learn that congenital cardiac defects can occur in babies born to women with Sjogren's. Hrm, that's not cool. Oh, and pregnancy can exacerbate symptoms like nobody's business. Strike 2. Instead, I opted to improve my quality of life by buying a condo; first floor bathroom has been life-altering, as was losing my job not long after closing.

in the last 22 years, I have managed to get a job and stick it out (21 years officially this month!), acquire a handful more chronic illnesses, and not one but two cancer scares that resulted in a hysterectomy at 38 years, 7 months and 4 days. but who's counting?

in that same time, my brother remarried and two more kids, all boys; Dad married J2's mom less than a year after mom died; and D got married and they have three kids, also all boys. All told I have eight niblings (nieces and nephews) and three great-nephews. my brother and all three stepbrothers are married and have kids, leaving me, the sole daughter and middle child, unmarried and childless.

I'm lucky to finally be at an age where strangers can't just badger me about not having spawned. at 38, I could have potentially had time left, but now, I'm well into the years where it's no longer wise to speculate. I hope it's the same for dating. The current object of my obsession is about 8 years older than me, and while the physical health has been addressed (but not improved), the mental and financial ends are still a hot mess, and I don't wish that on anyone. I guess these things have a way of working themselves out after all?
just_cyd: (Default)
I need help. I KNOW I need help. LOTS of help. Do you want the list alphabetically? Chronologically from when I first identified or asked? by order of importance or overall financial expense?

Historically, asking for help has not gone well. Asked for help with my flowerbeds once, only for the helpers to show up to take me to dinner, after which it was too dark to do anything outside. "oh, ha ha, sorry, we were hungry and wanted to treat you" was the wildly troubling response. Other requests were met with "oh, well, first we must take this trip, and then that trip, and see these people and then those, and how does the second Tuesday of never work for you?" My failure to pair-bond and spawn held against me with the most saccharine smile.

Asking friends for help at my rock-bottom lowest also backfired. I was in constant, unmanaged pain, my house was a wreck, but I was too [whatever the words are] to articulate what I needed. So the day was spent with a few friends helping with what ended up being mostly cosmetic things: removing wallpaper border from bathrooms, moving some other things around. one friend (since dropped) chastised me for my request not being "serious" enough, that she had given up a day with her husband & family for this, and how dare I ..... The entire day I was a hair's breadth away from losing my shit, having put myself out there so far to even ASK, then to be met with this.

I'm not sure I've asked for help from friends since. A single friend, maybe, if I'd keep an eye on her littles, her assistance also providing an escape from the confines of her house in the dead of winter.

more recently, friends have helped, in the form of readying my house for a roommate, moving and building furniture, appliances, hauling unwanted things off. Their kindness given freely, readily, if only I know what I want.

Since The Wreck (always capitalized, and usually assumed that others know what I mean, five years on), very few people have been to my house, tapering off as I got better and then the arrival of Covid restrictions. D has been the only one to see the horror of what it has become, The opening scenes of a Bravo TV Series. Those issues are fueled and compounded by the mental and physical issues, and the growing disconnect from reality. I am too embarrassed to list the things that need to be dealt with, but the cat tree in the corner might give you an idea.

Meds are off. I know they are. Or they're insufficient, or just plain wrong for what my grey matter needs right now. manic manic manic and oh, yes, manic. can't be depressed if you can't slow down long enough to wallow in it. the physical effects are starting to show, and the financial ramifications are blindingly clear week after week when I get the e-notices from my bank.

A friend recently told me the tale of her now-adult (how?!) daughter's "grippy socks vacation" and how it came about. my unspoken, knee-jerk, response was "oh, how lovely to have the freedom to spend two+ months focusing on mental health!". There's been half a dozen times this year alone that I wanted to scream "UNCLE!" and do whatever it takes to get whatever help I need, but then I look at my calendar, and realize "nope, that's not a good time for me." Hotels are non-refundable, and the trips are too tied to my happiness, that missing seeing my friends might do more damage than just letting this all go unchecked. I find myself getting hopeful over ND (among others), and then pull back, knowing I have no right to foist this level of crazy on him, especially without his express consent.

Driving down here, I cried no fewer than six times. Three for sure on the first leg, and at least on the second leg, believing for sure that Show #1 would add to the count. Last night it snuck up on me, pain being the catalyst, along with a jolt of nostalgia of seeing Darren, Holden remembering me, that full-circle moment of this journey. Today, I'm mostly OK, but starting to tense up knowing that tomorrow I must head home.

Am I delusional? perhaps. Am I separating realities in a possibly unhealthy way? signs point to yes. will I get to the point that my reality, and actual reality, become a Venn Diagram of two circles on opposite sides of a chart?
just_cyd: (Default)
Back to the eye doc today for non-dilation testing: The Octopus. I've faced this beast a bunch, but it's usually just the blinky-light portion. Today I got the blinky-lights, plus the Space Invaders Centipede as well.

The good news is that things look pretty good, especially when compared to 10 years ago when things went sideways for a while.

The not so good news is that there's still some vision loss in the lower/inner quadrant of my right eye, but nothing like before. So what the tests show don't match up with what I'm describing. Spot is at roughly the 10 o'clock position in my right eye, not the 7 or 8 o'clock position.

Because these tests thus far are negative, I'll be back in 4-6 weeks for another round, and then we'll see if an MRI is necessary. No, I'm not pushing for it now, because 2024's deductible is a LOT lower.

in other vision news, my glasses are not ready. Doubt I'll see them before the new year even though I was promised two weeks. It also involved three phone calls because the lady couldn't find me in the system. i'm curious how my vision will be with progressives that have the bifocal starting at the proper spot rather than ridiculously low.
just_cyd: (Default)
I have an emergency eye appointment tomorrow. for about two weeks now, I've had this blob/spot in my vision in my right eye. it moves with my eye, as opposed to how a spot on my glasses would not move. finally got annoyed enough to call Dr M's office, and rather than getting to leave a message, they ran it by triage, and scheduled me for as early as they could on Monday.

Fuck.

I've had eye drama before but that was more my left eye, and it was in the lower/inner quadrant. this is my right eye, and more central.

I guess the good news is that I'll only have to work half a day, because they will no doubt dilate me, and there's no way to work with that nonsense.
just_cyd: (Default)
Started back on Trulicity two days ago. it's been brutal. I mean, when I started this two years ago it was brutal, but it was also a lower does. This time, they just renewed the current, higher does, so my body is REALLY not on board with this. Yesterday, I might have consumed 500 calories; today is more than that, but still well below 1000. I've got a bunch of protein drinks, eggs, fruit cups, applesauce and cottage cheese. As long as I remember to only eat a tiny bit at a time, I think I can get through this.

This is also a VERY strong indication as to why i will NEVER consent to any sort of weight loss surgery: this will fade with time, or if I just don't take the next shot. WLS is permanent, and the potential for malnutrition is pretty freaking high.

*~*~*~*~
nastygram from the condo association. i hate the threats but know I'm behind.

~*~*~*~*~*
booked hotels for Asheville and Atlanta. lovely juxtaposition to the line above, eh? Mental health is health, dammit. these road trips make me happy.

*~*~*~*~
Atlanta will include a visit with Ben, crashing at his place. As long as I don't lose my head, i'll be great. we had a five hour phonecall on Sunday, and it was lovely. Well, it started out because he was still freaked over his Saturday, but after talking it out, we were all over the map and laughing more than anything else.

~*~*~*~*~
Need to sign up for health insurance. so many very sucky options. $4k, $5k, or $10k deductible? separate policy for serious illness/hospitalizations? We used to get a 1-2 page summary with the premiums, but I've yet to find that info. deadline is 10/31/23. I guess I'm logging on this weekend to figure this out.
just_cyd: (Default)
There's a lot of things I've not been properly prepared for, and navigating my own health care has been one of them.

I got lucky that when I moved back to Ohio in 1996, I was able to return to my family practice I'd been using when I moved away in 1993. Not having to re-invent the wheel with my medical history was nice, as uncomplicated as it was then. When things started getting interesting, this doc was able to refer me to the necessary specialists (and when that first one was a raging asshole, they found me another one).

What I was NOT prepared for, however, was reaching the point of being older than my doc. At least, with Dr M., his baby face gave the perception of him being much younger, when he's actually a year or two older. He still has the baby face, but a few grey hairs at the temples is helping him gain clout with his elderly patients. I see him on Tuesday, and I'm taking the whole day off for it. pupil dilation sucks.

Another thing I was never prepared for? My family doc retired. she's not that much older than me, but enough older, I suppose, to retire. or, as my mom did, "choose not to work"?

So while I'm badly dealing with the shit insurance I have, on Friday I'll see the PA (or NP?) in that same practice, and hope like hell we can keep things as-is with all the drugs I'm on.

Why can't something be easy??
just_cyd: (Default)
So it's August now? huh. quick summary, with more later/separately:
1. my little brother turned 50 on August 1st. 50, 3 kids, 2 grandkids, and just shy of 30 years with his job.
2. I've reconnected with Ben, hashed out our mutual misunderstandings, and are now messaging daily. silly stuff, serious stuff, the whole nine. sigh of relief to have my oldest (but younger, he'll point out!) friend back
3. work. i hates it! taking small steps in what I hope is the proper direction for me.
4. took a trip. climbed a tree drove 1500 miles in 4 days.
5. engaging more on social media scored me a nice interaction with Someone Famous, and then an opportunity that's had me hyped up for days
6. joined postcrossing. why the hell not? first card mailed, 2nd going out tomorrow
7. hit critical mass with health insurance/Rx/etc. need to figure that out so I can get much needed drugs. apparently amazon dot com has a mail order pharmacy, and that's what I have to use?!
8. Might maybe manic again. not sure how to tell. manic? really excited about something? over-caffeinated?
9. Concert #6 coming up on 8/8/23 in Cincy. booked a hotel room to ease the parking and driving home situations. booked a Lyft to get to the venue. plans for wednesday piling up. Keepsakes? lunch with Jo?
10. Dad continues to be dad. Diane needed some sort of biopsy done. we get info in bits and pieces, in not-timely manner and not always in logical order
11. booked a ticket for Mercury Stardust in Columbus.
12. nearly-weekly calls with Jo mean that i'm getting shit done. we talk up to 2.5 hours, and we're both chipping away at things during that time. it's amazing what I can get done when I'm focused on other things.
13. Still a crazy cat lady, still wanting all things Cat Lady Still not ready for another feline roommate.
14. sleep is jacked, big time.
15. I need to make this a daily habit, as there's too much in my brain screaming to get out at all times, and it can be rather inconvenient when something slips out unattended.

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